It was an adventure to say the least – last night Rob and I threw caution to the wind and took all three kids out to Chinese (a dinner date with one of my favorite people ever – Erin – her husband Paul and her son Jeremy who was also born in May like Robbie). [...]
This video needs no words – please watch and consider what you can do to be a part of the cure.
My family has run into a bit of bad luck lately, and I’ve been in a funk thinking that we can never seem to catch a break. I get so stressed and upset when things don’t go my way, when things get hard… Then I have a few reminders that make me think again… [...]
What better way to spread awareness than to share your own story? I would like to extend my services to any blogger (or wannabe blogger) out there who either has EB themselves or has a child / family member with EB. I am offering the ability to share your story, blog about your experiences, all [...]
If you happened to be one of the lucky, countless number of people in the throng of bumper-to-bumper rush hour traffic traveling northbound I-75 at approximately 6:00pm last night… well you may have had yourself quite a show! That show being a little 5 foot tall girl hurdling over the interstate median guard rails. Ironically [...]
Yesterday I officially submitted my application to become a Debra Ambassador. As I mentioned in my previous post (and on the Causes section of this site), Debra is the Dystrophic Epidermolysis Bullosa Research Association of America, the official organization dedicated to finding a cure for EB. I was anxious to submit, knowing that in such [...]
